Susan E. Thomas, MD

Dr. Susan E Thomas, M.D., former Associate Professor of Pediatrics, passed away in early April after a lifetime of managing Cystinosis. She completed medical school at Loyola University Chicago Stritch School of Medicine and pediatric residency at the University of Chicago. She pursued her Pediatric Nephrology Fellowship at Seattle Children’s before joining the faculty at Michigan in 1999. Dr. Thomas served as Medical Director of the Kidney Transplant program until 2005 when illness forced her to leave clinical medicine.

Susan dedicated her life to helping children with kidney disease. She was inspired by the fine doctors at the University of Chicago who helped her as a teen with her own transplant. She was a fierce patient advocate and set her mind to easing the management of cysinosis for patients and families from all over. Even during her prolonged illness, she worked to improve the lives of children with kidney disease and contributed to publications in 2020 on myopathies in patients with Nephropathic Cystinosis. She contributed intellectually and financially to the pediatric transplant program, especially Camp Michitanki (now known as North Star Reach). She is remembered as an excellent clinician, colleague, and a courageous person. On a personal note, Susan had a brilliant wit and wicked sense of humor. She was a colleague, a friend and a very decent human being. I will miss our conversations and her tweets.

She enjoyed traveling across the United States visiting national parks with her mother and a 25th birthday trip to London, Paris and Zurich. She is survived by her father James Thomas, mother Barbara Thomas, brother Jim Thomas, uncles Tim (Michelle) Thomas and Phillip (Nancy) Kucera and former husband Martin Schendel. In lieu of flowers memorial contributions may be made to the Cystinosis Research Network or University of Michigan Pediatric Transplant Camp Michitanki in her name.

-Submitted by Patrick D. Brophy MD, MHCDS
William H. Eilinger Professor and Chair
Department of Pediatrics at the University of Rochester School of Medicine and Dentistry
Physician-in-Chief of the Golisano Children’s Hospital at the University of Rochester Medical Center

 

 

William E. “Bill” Segar

Bill Segar died peacefully at home, in Indianapolis, IN on Feb 1, 2021. He was 97 years old. A very touching tribute to him was written by his son Jeff Segar [a neonatologist and successful researcher in his own right] and published in Pediatric Research. I encourage you to read Jeff’s lovely tribute. This is my personal tribute to a mentor, friend and someone I have known for over 45 years.

I met Bill in 1974 when I became an intern at the University of Wisconsin. Bill was the pediatric “nephrologist” although he would be the first to say that his real training was in pediatrics and in salt and water physiology. Within months of my coming to Madison Bill became the Department Chair and remained so for 10 years. Many of you will not have met Bill, He did not go to meetings frequently and focused his efforts in and on the Department. But you will have known some of his contributions. In 1957, while Bill and Mac Holliday were both on the faculty at Indiana University [Bill’s Medical School alma mater], they published a method to calculate the maintenance fluid and electrolyte needs for hospitalized pediatric patients. This approach was taught widely around the world. What you may not know is Bill and his collaborator, William Moore, published important studies in animals on the non osmotic control of ADH.

Bill’s understanding of fluid and electrolyte physiology was extensive. As a trainee, I did not appreciate how well he thought through issues and how well he could see a patient problem and quickly think through what needed to be done. A year after I came to Wisconsin, Bill recruited another nephrologist, Russell Chesney. The chance to spend 10 years with Bill and Russell made it abundantly clear how much each knew and understood and how well they could process and solve problems. How lucky was I.

Bill was an excellent teacher. It meant a lot to him that a student, trainee or even faculty was not only knowledgeable but could use that knowledge to help patients and support colleagues. Only much later did I realize that for Bill asking a question to make things clearer was never wrong. What really bothered him was NOT asking. Bill was incisive, analytical and at times even acerbic. But we knew he was challenging us to be better thinkers and doctors.

I am grateful for the time I got to spend with Bill and appreciate the many things I learned from him. I know I speak for many. Farewell and thank you so much, Bill.

-Aaron L. Friedman, MD, University of Minnesota

H. William Schnaper Tribute Page

Life Course Journey of a True Mensch

H. William (Bill) Schnaper was the Irene Heinz Green & John LaPorte Given Chair in Pediatric Research and Tenured Professor & Vice Chair, Department of Pediatrics, Feinberg School of Medicine, Northwestern University. He was a graduate of the Baltimore Polytechnic Institute (1967) and received a B.A. from Yale University (1971) and his M.D. from the University of Maryland (1975). He trained in Pediatrics at New York’s Mount Sinai Hospital and was Chief Resident (1975-78). It was there that he met a nurse named Maria and started a lifelong journey of love and family. He next served in the National Health Service Corps (1978-80) and was a Senior Clinical Instructor in Pediatrics at Hahnemann Medical College (1979-80). He then entered a fellowship in Pediatric Nephrology at St. Louis Children’s Hospital and the Washington University School of Medicine (1980-82) under the mentorship of Alan Robson and supported by the National Kidney Foundation. He was a Research Fellow in Pathology at the Jewish Hospital of St. Louis under Carl W. Pierce during his training and through 1988. He received an NIH Clinical Investigator Award to examine the soluble immune response suppressor in nephrosis followed by an NIH R01 to examine inhibition of tumor cell growth by the lymphokine SIRS. He rose through the ranks as an Instructor, Assistant, and Associate Professor of Pediatrics at Washington University School of Medicine before moving to Washington, DC and joining the Faculty at Children’s National and George Washington University in 1990 as an Associate Professor. He also served as a Special Volunteer/Expert in the Laboratory of Developmental Biology at the NIH from 1990-94.

In 1994, Bill joined the Faculty as an Associate Professor of Pediatrics at the Feinberg School of Medicine, Northwestern University Medical School where he advanced to a tenured Professor in 2000. Bill assumed numerous leadership responsibilities including Director of the Fellowship Training Program, of the Research Career, Development and Physician Scientist Program, of the K and TL1 Postdoctoral Awards Programs of Northwestern University’s CTSA, and of the Pediatric Academic Affairs and Child Health Research Center (CHRC) and its Integrated Graduate and Fellowship Programs. As a faculty member Bill was highly academically productive, with more than 170 peer-reviewed publications. He made seminal research contributions related to the immunologic basis and molecular pathogenesis of nephrotic syndrome, the role of cell signaling and tubulointerstitial injury in the development of renal fibrosis among other areas. In addition, he served as a mentor for over 60 students and trainees, ranging from high school, undergraduate college, medical school, graduate school, fellowship, post-doctoral training, and junior faculty. Bill served on and chaired more than 20 NIH and other scientific organization grant review committees and certainly facilitated the investigative careers of an entire generation of pediatric nephrologists.

As if these were not enough, Bill served on the Board of Directors of Children’s Memorial Medical Center. He also was Chair of the American Board of Pediatrics, Sub-Board of Pediatric Nephrology, later serving as medical editor for the Sub-Board for many years, work that he continued to do through the late stages of his illness. Along with Bruder Stapleton, Dick Behrman and Ted Sectish, he co-founded the Council of Pediatric Subspecialties. He played important roles in many scholarly publications, including being the Medical Editor of the journal Nephrology and on editorial boards for the Journal of the American Society of Nephrology and the American Journal of Physiology (Renal Physiology), as well as being a founding member and the longest member of the Editorial Board of the journal Pediatric Nephrology.

Distinguished service was part of Bill’s DNA, as exemplified by his service to the American Society of Pediatric Nephrology (ASPN) and the International Pediatric Nephrology Association (IPNA). He had the longest tenure ever on ASPN Council from 2000-2014 where he was Council Member (2000-04), Secretary-Treasurer (2004-08), President-Elect (2008-10), President (2010-12) and Past-President (2012-14). He was the North American Regional Secretary of IPNA from 2004-08 and Chair of the Scientific Organizing Committee for the 15th IPNA Congress in New York City in 2010. He was also the organizer of the American Society of Nephrology’s “Why kidneys fail: translating basic mechanisms of disease progression in novel therapies” during Renal Week 2005. He was the recipient of the Jose Strauss M.D. Award for Career Academic Excellence in Pediatric Nephrology and received the ASPN’s highest honor, the Founder’s Award, in 2018.

During Bill’s long tenure on ASPN Council, he was challenged with multiple tasks including working with then President Lisa Satlin to transition the ASPN office to a permanent one with dedicated professional staffing. Along with Sandra Watkins and Sharon Andreoli, he conceptualized and initiated the Corporate Liaison Board (CLB) to strengthen ASPN’s fund raising efforts. Additionally, he heralded both the first ASPN Strategic Planning Initiative and Leadership Development Program along with Joseph Flynn. With Bill Smoyer, Marva Moxey-Mims and others, he also started the ASPN Therapeutics Development Committee. He led an effort to have a Program Project Grant funded for ancillary studies to the NIH FSGS-Clinical Trial with 4 investigators receiving NIH funding. Finally, and most importantly in terms of Bill’s legacy to ASPN, he participated in the founding of the ASPN John E. Lewy Advocacy Scholars Program, for which he became a mentor and nurtured advocacy skills of over two dozen junior pediatric nephrologists, helping to ensure that ASPN will be well-represented on Capitol Hill for the next generation.

Bill’s dedication to pediatric nephrology and academic medicine was only exceeded by his devotion to his family, including his wife Maria, daughter Adrienne, sons Michael and Owen and his seven grandchildren. He coached soccer teams and mentored school science projects. Music was also an important part of Bill’s life. He played a variety of instruments—violin, bass guitar and guitar—and performed in diverse settings such as a band while in college at Yale, his Synagogue choir, a local Klezmer band and singing the lyrics he had written for songs commemorating ASPN’s 50th Anniversary. He was also a dedicated runner and completed the Chicago marathon.

So much has been said by so many colleagues about Bill and his impact on our field and our community. His remembrance will live on with the H. William Schnaper Honorary Lecture and his wonderful interview on the ASPN’s History Project site. At the end of the Memorial Service for Bill, everyone sang “Puff the Magic Dragon,” and we can only imagine Bill’s smiling face to us all as we said one last goodbye.

-Drs. Laurence Greenbaum, Victoria Norwood, Eileen Brewer, William Smoyer, Marva Moxey-Mims, Joseph Flynn, Barbara Fivush, Patrick Brophy, Brad Warady, Sandra Watkins, Isidro Salusky, Rick Kaskel

Dr. Schnaper's Funeral Service 

H. William Schnaper, MD (Part 1)

H. William Schnaper, MD (Part 2)

H. William Schnaper, MD (Part 3)

John Herrin (2020)

It is with great sadness that we announce the passing on October 25, 2020 of John T. Herrin, MBBS, FRACP, 84, former Director of Clinical Services within the Division of Nephrology at Boston Children’s Hospital.

After his initial medical training, John left his native Australia and moved to Boston. He spent much of his early career at the Massachusetts General Hospital, where he was chief of Pediatric Nephrology from 1974 to 1994. He then moved to Boston Children’s Hospital in 1994, where he remained a cherished member of the Division of Nephrology until he retired in 2014. John held an appointment at Harvard Medical School for 49 years.

John was a passionate medical educator and developed a preceptor practice program to enhance how hundreds of pediatric residents and dozens of nephrology fellows learned clinical nephrology. He welcomed physicians, nurses, and students from around the world to Boston to spend time observing pediatric nephrology practice and care.  He had near total recall of the medical literature and was a walking encyclopedia of clinical pearls that he delighted in sharing.

John was also the consummate clinician, totally committed to his patients and their well-being. There were no constraints to the length of a clinic visit or the duration of in-patient rounds if there were questions to be answered or concerns to be assuaged. In all his interactions, he modeled rare equanimity and unfailing generosity.

For those who worked alongside John, his extraordinary skills as a physician, his careful guidance as a teacher and mentor, and his unparalleled kindness as a colleague will always be remembered. He will be sorely missed.

Members of the Division of Nephrology, Boston Children’s Hospital

Dr. John T. Herrin’s Obituary

Michel Broyer (2020)

We are very sad to announce the death of Professor Michel Broyer on March 10, 2020 at the age of 86, following a COVID19 infection.

Early during his residency in Professor Pierre Royer’s unit at the Necker-Enfants Malades Hospital in the early 1960’s, Michel Broyer was fascinated by the recent developments in pediatric nephrology. His unique aim became to offer children with kidney disease the best possible diagnostic approach and treatment. He was the first in Europe in 1969 to develop and adapt dialysis techniques, in particular hemodialysis, to children. It was a heroic period when the vascular access was by an external arteriovenous shunt and the sessions lasted more than 8 hours. In 1973 he took in charge pediatric kidney transplantation. Despite a difficult start, his efforts made it possible for these children not only to survive but to return to an almost normal life. Since then, more than 1300 kidney transplants have been performed in this centre. He succeeded Pierre Royer as head of Pediatric Nephrology department in Necker Enfants Malades Hospital from 1978 to 1999.

Michel Broyer’s contributions have not been limited to the treatment of chronic kidney disease. He has studied all areas of this specialty, as evidenced by his list of more than 400 publications. Himself and Renée Habib, both internationally recognized for their work, described a number of new entities in childhood kidney disease. With Pierre Royer and Renée Habib, he has made the Necker-Enfants Malades hospital a major clinical and academic center of pediatric nephrology, internationally recognized.

In 1975, Michel Broyer and Renée Habib organized highly successful annual Pediatric Nephrology seminars that continue nowadays, attracting pediatricians and nephrologists from man  parts of the world. Michel Broyer also initiated the French “Pediatric Nephrology Club”. He defined its role as follows: “The annual meeting of the Club has been and remains for the youngest members an opportunity to learn how to communicate, a preliminary and logical step towards participating in international meetings. The small size of the Club has also helped to maintain the feeling that members belong to the same family where everyone knows each other and is likely to help each other. Thanks to the Club, cooperative studies have been carried out. Over time, the scientific quality of the meetings continues to improve, while their tone remains very convivial. ” In 2000, the Club was renamed the Société de Néphrologie Pédiatrique.

The conviviality between pediatric nephrologists continues with another generous idea of Michel Broyer who initiated in the early 2000’s a yearly three-day cultural meeting of the French speaking pediatric nephrologists retired their professional activities. These meetings are since organized every year in a different town by the local pediatric nephrologist. Himself organized this meeting in 2015 in Lorient, close to his house in Britany. He also co-organized the last 2019 meeting in Paris with his Parisian colleagues. These meetings illustrate his fidelity in friendship, for the benefit and pleasure of all.

Michel Broyer trained many pediatric nephrologists from France and abroad. Many became leaders in their countries. All of them admired his medical knowledge, his scientific rigour and his generosity for the children, their families and colleagues.

Michel Broyer had a major role in the development of the registry of the European Dialysis Transplantation Association and in the association “France Transplant”. He was editor of the journal “Pediatric Nephrology”. For several years, he chaired the Ethics Committee of the Necker-Enfants Malades Hospital.

Michel Broyer was in the noble sense of the terms “un honnête homme” and “un homme de bien”.

Patrick Niaudet, Marie-Claire Gubler, Marie-France Gagnadoux, Chantal Loirat and Rémi Salomon

COVID-19 Resources

ASPN has been actively monitoring the developments related to COVID-19 and the emerging outbreaks within the United States and elsewhere.  We are committed to the health and wellbeing of our membership and the patients and families you serve.

We are awaiting word on plans for the upcoming PAS meeting and will share details as soon as they become available.

Members of our Clinical Affairs Committee have put together pertinent guidance below, on caring for renal patients.

ASPN- COVID-19 information

General COVID-19 updates:

CDC:   https://www.cdc.gov/coronavirus/2019-ncov/index.html

World Health Organization: https://www.who.int/emergencies/diseases/novel-coronavirus-2019

CDC Webinar on COVID19 in pregnant women and children: (link not yet available)

General Family Information: AAP:  https://www.healthychildren.org/English/health-issues/conditions/chest-lungs/Pages/2019-Novel-Coronavirus.aspx

CDC: Resources for higher risk individuals: https://www.cdc.gov/coronavirus/2019-ncov/specific-groups/high-risk-complications.html

Regional Contact Information for Hospital Preparedness Program (HHS recommends contacting local/state health departments if supplies are running low)

https://www.phe.gov/Preparedness/planning/hpp/Pages/find-hc-coalition.aspx


Information for Dialysis Centers:

CDC Dialysis Recommendations: Interim additional guidance for infection prevention and control recommendations for patients with suspected or confirmed COVID-19 in outpatient hemodialysis facilities: https://www.cdc.gov/coronavirus/2019-ncov/healthcare-facilities/dialysis.html

American Society of Nephrology- COVID-19 Information for Providers of Dialysis Service- webinar: Slides: https://www.asn-online.org/g/blast/files/ASN_COVID-19_webinar_combined_slides_03.11.2020_Final.pdf

Webinar: https://www.asn-online.org/ntds/


Webinar Recording Available: COVID-19 Informational Webinar for Providers of Dialysis Services

On March 11, 2020, ASN conducted an informational webinar focusing on new COVID-19 guidance for dialysis facilities from CDC and a presentation on managing patients with COVID-19 who require dialysis. This 60-minute webinar explored the possible implications for patients receiving renal replacement therapy and the staff who care for them. The webinar featured presentations from Shannon Novosad, MD, of CDC, and Suzanne Watnick, MD, FASN, and Liz McNamara, MN, RN, of Northwest Kidney Centers.

The webinar recording and slides have been posted on the NTDS website, which also has links to all updated materials from CDC. 


Kidney Transplant Information:

From American Society for Transplantation for transplant recipients: Coronavirus disease 2019: frequently asked questions.

American Society of Transplantation: COVID-19: FAQs for Organ Transplantation (geared more towards transplant providers): https://www.myast.org/sites/default/files/COVID19%20FAQ%20Tx%20Centers%20030220-1.pdf

US Department of Health and Human Services: Information for transplant programs and OPOs regarding 2019 novel Coronavirus: https://optn.transplant.hrsa.gov/news/information-for-transplant-programs-and-opos-regarding-2019-novel-coronavirus/

Association of organ procurement organizations: COVID-19 bulletin (information regarding organ procurement) https://www.aopo.org/information-about-covid-19-coronavirus-is-being-released-rapidly-we-will-post-updates-as-we-receive-them/

Strategic Plan

Strategic Plan 2016-2021

 

Mission

The American Society of Pediatric Nephrology is an organization of pediatric nephrologists and affiliated health care professionals. Our primary goals are to promote optimal care for children with kidney disease through advocacy, education and research; and to disseminate advances in clinical practice and scientific investigation.

Goals
  1. Advance optimal care for children with kidney disease
  2. Enhance member and public awareness of ASPN activities
  3. Ensure a robust pediatric nephrology workforce
  4. Enrich the value of membership in ASPN to all its members
  5. Create and maintain a robust, stable infrastructure that will allow us to accomplish our mission
Strategies

1.1 Maximize effective partnerships with other professional organizations

1.2 Educate external agencies about the needs of children and pediatric nephrologists

1.3 Promote research focused on pediatric kidney disease

1.4 Support development and dissemination of clinical practice guidelines

 

2.1 Develop communication plan aimed at internal stakeholders

2.2 Increase transparency of internal processes to the Society membership

2.3 Leverage existing, and develop new, communication platforms

 

3.1 Monitor and anticipate workforce needs

3.2 Increase resident/student interest in pediatric nephrology as a career

3.3 Improve professional satisfaction and decrease attrition of pediatric nephrologists

3.4 Involve and integrate affiliate members in workforce development, expansion and retention

 

4.1 Increase opportunities for, and encourage member engagement in, ASPN

4.2 Maximize opportunities and support for professional networking and leadership

4.3 Support the ability of ASPN members to perform clinical activities effectively

4.4 Provide access to effective educational resources and certification based on career stage

4.5 Promote the ability of members to participate in and conduct research

 

5.1 Ensure financial sustainability

5.2 Support and expand the ASPN Foundation as the mechanism for philanthropic opportunities

5.3 Maximize partnerships with patients and patient advocacy groups, other non-profits

5.4 Clarify and optimize the relationship with the CLB

5.5 Strengthen central office operations

5.6 Enhance technology capabilities to meet current and future needs

Eunice G. John (2019)

 

It is with profound sadness that we announce the passing of our colleague and friend, Dr. Eunice John. Dr. John retired as Professor of Pediatrics at the University of Illinois College of Medicine after serving UIC residents and patients for 42 years.

Dr. John, who was chief of pediatric nephrology and medical director of pediatric transplant at UI Health, was a revered leader in kidney transplant innovations and outcomes. She was the first Chicago physician to start long-term peritoneal dialysis and to use the double lumen catheter of hemodialysis in children in the early 1980s. In 2002, Dr. John performed the first pediatric living-donor bowel transplant in partnership with Dr. Enrico Benedetti, the Warren H. Cole Chair of Surgery. The patient, who is now in his 20s, is the longest living recipient of this type of surgery.

Dr. John was a graduate of Christian Medical College in Vellore, India. She completed a residency at Tulane University and a fellowship in pediatric nephrology at the Yeshiva University, Albert Einstein College of Medicine. She was a member of the U.S. Army Reserve for 16 years.

She had an impressive record of scholarly activity, with more than 100 publications on her CV. She obtained such funding as CkID and NIH grants, and she was sought after throughout the world as an invited speaker. But she would want the emphasis to be on the ways that she furthered her area of study by helping others to succeed. Dr. John created a lasting impact through her tireless work with patients and young physicians. She was deeply committed to community service, spearheading a wide range of programs for children and families both local and abroad. As a testament to her excellence, she received 15 teaching and mentoring awards, more than 15 service awards, and 5 patient care awards from UI Health.

Dr. John had a compassionate approach to all aspects of her profession, and she was a remarkably generous person. She was devoted to her family members, particularly her late sister (Iris P. Samuel) and her children (Smitha and Suneeth Samuel). Arrangements have been made with Smith-Corcoran Funeral Home at 6150 North Cicero Avenue in Chicago: funeral service on Saturday, June 8, at 11 am; and visitation on Friday, June 7, from 3 to 8 pm. Internment will be in the Bohemian National Cemetery. For the obituary and details, please visit the Smith-Corcoran website. The Department of Pediatrics will have a memorial grand rounds in Dr. John’s honor on September 20, 2019.

It was an incredible privilege to work alongside Dr. John. She will be forever remembered as an extraordinary clinician, educator, leader, and human being with unparalleled devotion and kindness.

Benjamin W. Van Voorhees, MD,
MPH Professor and Head, Department of Pediatrics

Robert O. Hickman, MD (2019)


Robert Othello Hickman
passed peacefully from natural causes on April 4, 2019. He was born in Monticello, Utah on September 27, 1926, the youngest of five children of Othello and Mary Helen Bunker Hickman. He was reared and educated in Logan, Utah, served in the U.S. Air Force from 1945 to 1946, followed by an LDS Mission to France from 1947 to 1949. He married Lucy Jean Whitesides on August 18, 1950. After receiving a degree in anatomy from the University of Utah, Bob headed east to obtain his medical degree from the University of Maryland. He completed an internship with the University of Utah in pediatrics at County General Hospital in Salt Lake City, followed by residency training in pediatrics at the University of Washington from 1958 to 1960. During his residency he joined with Dr. Belding Scribner and, under his tutelage, was involved in placing the first child in the world on both long-term hemodialysis and home hemodialysis.

Bob is most well known in the medical world for the part he played in developing the Hickman catheter, used widely with cancer patients to deliver intravenous nutrition and chemotherapy as well as for blood draws. It was a godsend to the patients and the nurses caring for them. His efforts were recognized by UW Medicine in 2011 when he received its Legacy Inventor Award. But, he will be most remembered by his colleagues for being kind and compassionate, and by his patients for his singular devotion to them, especially the children. For his contributions to medicine and his dedication to both his colleagues and patients, he was selected to receive the University of Maryland Medical Alumni Association’s Honor Award and Gold Key in 2007, awarded for outstanding medical accomplishment and distinguished service to mankind.

Along with his professional pursuits, Bob will be remembered for his faithful service as a member of The Church of Jesus Christ of Latter-day Saints. During his tenure as Bishop, Stake President, Patriarch, Temple Sealer, and Mission President in both Haiti and North Carolina, he led by example, more than words, and did all he could to support and encourage those within his influence in their spiritual journey.

When he wasn’t working, or serving in church, Bob loved to ski. He instilled that love in his children at an early age and used his passion for the sport as a way to bring his children and grandchildren together for fun and memorable family gatherings year after year. He doted on his grandchildren and took great pride in their accomplishments.